Welcome to RARING, the voice of the rare disease community and a no-BS forum for patients and their families, rare disease patient organizations, and medical professionals. If you live with a rare disease or love someone who does, RARING is the podcast for you, by you, and with you every day. Tune in to hear leading experts discussing next-generation diagnostics and treatments. Learn from passionate nonprofit leaders talking about their highs and lows fighting for their communities. And laugh and cry as real patients and caregivers like you share authentic and inspirational stories about their challenges and struggles to busy living. RARING: Because together, our voices are louder.
On the show today, Tom Rhoads, advocate, caregiver, and Founder and CEO at Spencer Health Solutions, whose mission is — if we may so paraphrase — make life easier for families and caregivers by simplifying the complex world of prescription medication adherence. Tom talks about how to make the patient experience better by taking into account that any diagnosis is a family affair, and there’s more to living with an illness than biology. What do we mean? Well, the stress, anxiety, uncertainty, and cacophony of our health system could use a little implication — and that’s precisely what we focus on. What is patient-friendly tech? Do we really want smart toothbrushes? Smart coffee pots? Perhaps? But what could really come in handy is when advocacy goes right, and smart devices collide to transform even a tiny chunk of healthcare by meeting patients and their families where they’re at and on their terms. Enjoy the show. Learn more at https://spencerhealthsolutions.com
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