Welcome to RARING, the voice of the rare disease community and a no-BS forum for patients and their families, rare disease patient organizations, and medical professionals. If you live with a rare disease or love someone who does, RARING is the podcast for you, by you, and with you every day. Tune in to hear leading experts discussing next-generation diagnostics and treatments. Learn from passionate nonprofit leaders talking about their highs and lows fighting for their communities. And laugh and cry as real patients and caregivers like you share authentic and inspirational stories about their challenges and struggles to busy living. RARING: Because together, our voices are louder.
On today's show, our time's enduring topic — No, not COVID, but it does make a distinct and necessary cameo on the show — No, we’re talking about Telehealth. Telemedicine. Tele–all the things. Perhaps even the telephone when required. Joining us are Dr. Natasha Shur, Medical Geneticist, and Monisha Kisling, a genetic counselor both from Children's National in Washington DC. Telehealth has been around for a long time, but its adoption akin to no one trusting eBay and Amazon in the 1990s with the safety and security of using your credit cards online. My oh my how times have changed. And the same is true for what we discuss in this episode. Has COVID created a forced adoption? Yes. Are more people realizing how nice it is — when relevant — to NOT have to sit in a waiting room for hours? Yes. Is Telehealth perfect and here to stay? Well, it may not be perfect — perhaps a work in progress that shows real signs of being a real option — but, yes, Telehealth is here to stay.
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